Rooted in Our Stories

Built for our families. Focused on hereditary amyloidosis.

For the Next Generation…

#hATTRNextGen® is a community awareness initiative created to encourage conversations about hereditary ATTR amyloidosis, particularly the V122I gene variant that disproportionately affects many Black American families with West African ancestry.

Highlights

Have you thought about your legacy? I have.

Proverbs 13:22 reminds us that inheritance is about more than money. It's the values we teach, the traditions we keep, the stories we share, and the family history we pass forward.

We are more than our genes. We are our culture, our community, and our legacy.

Knowing your family history matters.

Show Up. Show Out. Raise Awareness through Art.

Trust isn't always about having all the answers. Sometimes it's about asking the right questions, listening, and moving forward one step at a time.

In my latest article for Health Union, I share what it was like when my care team invited me to consider a clinical trial for hereditary ATTR amyloidosis. As someone who has spent much of my career in clinical research, I never expected the decision would be so personal.

As I reflected on the experience, I found myself returning to Proverbs 3:5-6

"Trust in the Lord with all your heart and lean not on your own understanding; in all your ways submit to Him, and He will make your paths straight."

To me, this verse isn't about having certainty. It's about trusting God to guide each step, even when the path ahead isn't fully clear.

Read my latest article on Health Union.

Close-up of hands with manicured nails, one with a zebra print, a red ribbon in a loop, and the text 'Polished for a Purpose' at the bottom.

Show Up. Show Out. Raise Awareness through Art.

SHOW UP IN BURGUNDY

For Our Families.

For Our Future.

Erin Ealy-Poyant, Founder

Jessie L. Ealy, Father

I built #hATTRNextGen® in honor of my late father.

He lost his life to the V122I variant of hereditary amyloidosis in 2020.

Learning I was a carrier of this variant made me realize that too many Black families may have been affected by this disease or at risk without the information, cultural grounding, or community support that could have changed everything.

This space exists so our community can learn earlier, advocate louder, and protect the future with clarity and confidence.

This is legacy work, rooted in culture, truth, faith and love.

Red awareness ribbon on a black background.

Where Science

Meets the Soul

At #hATTRNextGen®, we believe health is about more than medicine. It is also about faith, family, culture, and community. This month's featured video reminds us that resilience often grows through the strength we draw from one another and the hope that carries us forward.

Credit: PBS Wisconsin, Why Race Matters – Black Spirituality and Resilience in the U.S..

In our community, often living with illness or the possibility of illness is not only a medical journey, but also an emotional and spiritual one for many families. This space highlights conversations, reflections, and stories that explore the intersection of faith, family legacy, and health advocacy.

Reflections to help us stay centered, rooted, and steady.

This educational video, created by the Amyloidosis Research Consortium (ARC) and featuring Dr. Justin Grodin, provides an overview of hereditary transthyretin amyloidosis (hATTR/ATTRv), including how the condition affects individuals and families.

hATTR Next Gen® is sharing this publicly available resource as part of our mission to help increase awareness, education, and access to trusted information for families impacted by hereditary amyloidosis.

All educational content, expertise, and video production credit belong to the Amyloidosis Research Consortium and the featured presenter.

Latest knowledge for the community rooted in what we need to know.

A Word For the Journey