Rooted in Our Stories
Built for our families. Focused on hereditary amyloidosis.
For the Next Generation…
#hATTRNextGen® is a community awareness initiative created to encourage conversations about hereditary ATTR amyloidosis, particularly the V122I gene variant that disproportionately affects many Black American families with West African ancestry.
Highlights
Have you thought about your legacy? I have.
Proverbs 13:22 reminds us that inheritance is about more than money. It's the values we teach, the traditions we keep, the stories we share, and the family history we pass forward.
We are more than our genes. We are our culture, our community, and our legacy.
Knowing your family history matters.
Show Up. Show Out. Raise Awareness through Art.
Show Up. Show Out. Raise Awareness through Art.
For Our Families.
For Our Future.
Erin Ealy-Poyant, Founder
Jessie L. Ealy, Father
I built #hATTRNextGen® in honor of my late father.
He lost his life to the V122I variant of hereditary amyloidosis in 2020.
Learning I was a carrier of this variant made me realize that too many Black families may have been affected by this disease or at risk without the information, cultural grounding, or community support that could have changed everything.
This space exists so our community can learn earlier, advocate louder, and protect the future with clarity and confidence.
This is legacy work, rooted in culture, truth, faith and love.
Where Science
Meets the Soul
In our community, often living with illness or the possibility of illness is not only a medical journey, but also an emotional and spiritual one for many families. This space highlights conversations, reflections, and stories that explore the intersection of faith, family legacy, and health advocacy.
I thought I would share what's on my playlist this week.
I've had a lot going on lately, and if I'm being honest, I was tired.
This album by Selah & Soul Co. spoke life into me this week. Sometimes music finds you exactly when you need it, reminding you to slow down, breathe, reflect, and reconnect.
Just thought I'd share in case someone else needs it too.
What's on your playlist this week?
Reflections to help us stay centered, rooted, and steady.
Looking for a quick and easy-to-understand overview of hereditary amyloidosis and ATTR-CM?
This short video from Doctorpedia featuring Dr. Daniel Zanger does a great job breaking down the basics and why awareness matters.
Thank you to Doctorpedia and Dr. Zanger for helping make complex information easier to understand.
Latest knowledge for the community rooted in what we need to know.
A Word For the Journey
Go Deeper…
Explore educational tools. community stories, and ways to stay connected.
Rep the Movement.
Rep the Movement.
The culture moves different.
More ways to rep the movement coming soon.
Hang tight, Fam.
Stay Rooted.
Get updates, tools, and stories, rooted in our families and our future.