Tools and wisdom rooted in our families. The #hATTRNextGen® Resource Hub brings together educational tools, support organizations, and culturally resonant resources to help individuals and families better understand hereditary ATTR amyloidosis. These materials support conversations about family health history, genetic risk, and navigating care.

 Resource Hub

Find hATTR Clinical Trials

This resource links to ClinicalTrials.gov, a public research database.

Eligibility varies by study. Talk with your clinician about whether a trial may be right for you..

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Awareness

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Hereditary Amyloidosis v122i Genetic Overview

Hereditary Amyloidosis v122i Overview

Hereditary Amyloidosis v122i Genetic Overview

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Hereditary Amyloidosis Free Genetic Testing Resources

Diagram illustrating signs and symptoms of hereditary ATTR amyloidosis, including heart signs, muscle and joint signs, nerve signs, body regulation signs, and digestive signs, with an emphasis on knowing risks and symptoms.
Download Symptom Graphic

Faith and Health

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Faith & Health

Flyer about free genetic testing for hereditary ATTR amyloidosis, featuring a DNA helix diagram, the hashtag #hATTRNextGen, and information on testing processes and programs.

Faith, Anxiety & Health

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Hereditary Amyloidosis Free Genetic Testing Resources

Faith & Self-Advocacy

Self-Advocacy

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What is Self-Advocacy

Self-Advocacy in Practice

Flyer with information about free genetic testing for hereditary ATTR amyloidosis, including who can get tested, how it works, and program options, with a DNA helix graphic in the background.

Hereditary Amyloidosis Free Genetic Testing Resources

NextGen Roadmap

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What Do I Do? My family member has hATTR

This Resource Hub will continue to expand with tools rooted in family, faith and self advocacy….

Informational flyer about free genetic testing for hereditary ATTR amyloidosis, including details about the disease, testing eligibility, how the test works, and how to get tested for free.

Hereditary Amyloidosis Free Genetic Testing Resources

Caring for Your Mind and Spirit

Living with hereditary amyloidosis, carrying a genetic variant, or supporting a loved one through health uncertainty can take an emotional toll. These directories may help you find therapists who understand the intersection of culture, identity, and health.

#hATTRNextGen® does not provide medical or mental health services and does not endorse specific providers. These directories are shared for informational purposes to help individuals explore support options.

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    Inclusive Therapists

    Directory connecting people with culturally responsive therapists. Filters include chronic illness, disability, caregiving support, identity, and life experiences.

    Find Support.
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    Therapy For Black Girls

    A trusted directory created to help Black women and girls connect with licensed therapists who understand the importance of culture, identity, and lived experience in mental health care.

    Find Support.
  • Men discussing mental health and hereditary amyloidosis

    Melanin & Mental Health

    A directory connecting individuals and families with therapists of color who understand the impact of culture and community on mental health and overall wellbeing.

    Find Support.