Rooted in Our Stories

Built for our families. Focused on hereditary amyloidosis.

For the Next Generation…

For Our Families.

For Our Future.

Erin Ealy-Poyant, Founder

A smiling man wearing a gray Nike baseball cap and a blue shirt, with palm leaves in the background.

Jessie L. Ealy, Father

I built #hATTRNextGen® in honor of my late father.

He lost his life to the V122I variant of hereditary amyloidosis in 2020.

Learning I was a carrier of this variant made me realize that too many Black families may have been affected by this disease or at risk without the information, cultural grounding, or community support that could have changed everything.

This space exists so our community can learn earlier, advocate louder, and protect the future with clarity and confidence.

This is legacy work, rooted in culture, truth, faith and love.

Red awareness ribbon on a black background.

Where Science

Meets the Soul

My mother and late father are featured in Pastor Thornton’s “Raise Up | Keeping Score” sermon from 7:42–18:24, reflecting on faith, segregation, and the Civil Rights Movement.

Around 17:09, my father speaks about our responsibility to be our brothers’ and sisters’ keepers. A message that continues to shape my work through #hATTRNextGen®.

You are welcome to watch the full sermon for context.

Reflections to help us stay centered, rooted, and steady.

I had the opportunity to sit down with Mackenzie from Mackenzie’s Mission to talk about the Green Book and the importance of documenting your family health history.

We discussed how keeping track of your family’s medical history is one way we protect future generations — by preserving information that could make a life-changing difference.

Because what we pass down is not just stories. It is knowledge.

Latest knowledge for the community rooted in what we need to know.